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    PA Lyme Resource Network
    Pennsylvania’s resource for Lyme prevention, education, patient support and advocacy.
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    PA Lyme Resource Network
    Tick-borne Disease Patient Symposium
    Saturday, May 14, 2016 — 8:30 AM - 5 PM
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    Learn about Lyme Disease
    and co-infections
    Get the latest tick-borne disease information
    in the state of Pennsylvania.
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    Find Lyme support
    groups in PA
    Find the help you need across the state of Pennsylvania.

welcome to PA Lyme Resource Network!

About PA Lyme

Our History

PA Lyme Resource Network, PALRN, was formally founded in 2012 by individuals compelled by personal experiences to help others affected by Lyme and Tick-borne diseases (Lyme/TBD). The founders and/or their family (often a child) all have Lyme/TBD. Each started or actively supported a local Lyme group. The "Lyme Journey" is often traumatic, not just because of the illness, but also the fear, uncertainty, frustration, anger, and financial hardship that often comes with it (read Cure Unknown, by Pamela Weintraub). The founders formed PA Lyme Resource Network to help others navigate this exceedingly complex and controversial disease.

Our Successes

LymeActionPA (LAP) www.lymeactionpa.com came first in 2007, with a focus on legislative action, to address the epidemic. LAP drove a grass roots effort across the state resulting in the 2014 passage of PA Act 83, the Lyme and related tick-borne disease surveillance, education, prevention, and treatment act, and also in denoting May as Lyme Disease Awareness Month in Pennsylvania each year. LAP served as the catalyst, bringing together the Lyme leaders who would go on to form PA Lyme Resource Network to align and enable Lyme Support groups across the state to accelerate and increase the impact on Lyme awareness, prevention and education in Pennsylvania.

A Critical Need

Pennsylvania continues to be #1 in the U.S. in reported cases of Lyme disease, with cases increasing each year. A 2015 PA Department of Environmental Protection study reported Lyme and other Tick-borne diseases in all 67 counties in Pennsylvania. Prior to this Lyme was considered a regional issue (primarily Southeast Pennsylvania). The need for PA Lyme Resource Network’s mission of Lyme prevention, support, education, and patient advocacy has never been more important.

PA Lyme Resource Network Patient Conference
PA Lyme Resource Network Tick-borne Disease Patient Conference

Conference Highlights

Keynote Speaker

“The Lyme Epidemic: The First 40 Years, 1976- 2016, What We Know and What We Don't"

Daniel Jaller, M.D., Author of LymeMD blog - http://lymemd.blogspot.com

Plus Patient Panel, Lunch Table Topics, Exhibitors and Afternoon Breakout Sessions.

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PA Lyme Resource Network Tick-borne Disease Patient Conference Schedule

Conference Schedule

8:30-9:15 — Registration
9:15-9:30 — Welcome
9:30-10:30 — Patient Panel - “Patients Who Are Better & In Different Phases of Healing”
10:30-10:45 — BREAK
10:45-11:45 — Keynote Speaker - Dr. Daniel Jaller, ILADS physician
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PA Lyme Resource Network Tick-borne Disease Patient Conference Schedule FAQ

Conference FAQs

When is the Conference?
Saturday, May 14, 2016 from 8:30 AM to 5:00 PM (EDT)
Where is the Conference?
Best Western Premier Eden Resort & Suites - 222 Eden Road, Lancaster, PA 17601
Where can I contact the organizer with any questions?
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LEARN ABOUT LYME DISEASE

What is Lyme Disease?

What is Lyme Disease?

Lyme disease is a bacterial infection transmitted to humans primarily through the bites of infected deer ticks. It is the fastest growing vector-borne infectious disease in the United States according to the CDC.

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Lyme Disease in Pennsylvania

Lyme Disease in PA

Over the last five years Pennsylvania ranked first for reported cases in the U.S.A. The Pennsylvania Department of Health reports that there were 5758 confirmed and probable cases of Lyme in 2013 with 7,400 cases, a 25% increase, in 2014.

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Lyme Disease Transmission

Transmission

Lyme disease is transmitted mostly by the nymphal deer tick. At this stage, the ticks are the size of a period at the end of a sentence. Many people are not aware when they’ve been bitten by a tick.

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Lyme Disease Symptoms

Symptoms

Initial symptoms may occur within a day or a week, and often people think they just have a flu or virus. Symptoms include fever, headache, general achiness, swollen glands, fatigue and a possible rash. But some patients may present with only neurological symptoms.

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Lyme Disease Misdiagnosis

Misdiagnoses

Lyme disease is known as the “great imitator”. Over 150 common Lyme symptoms are core symptoms of other diseases. It takes a skilled medical practitioner to recognize the patterns of what may seem like unrelated symptoms to make a diagnosis of Lyme disease.

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Children and Youth and Lyme Disease

Children and Youth

Children and youth are the most likely victims of Lyme and other tick-borne diseases. Their initial symptoms may go unrecognized and may be considered normal childhood illnesses, allowing the disease to progress undiagnosed and untreated.

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Lyme disease facts

new cases of Lyme
in PA in 2014

PA ranks #1 in
Lyme across US

PA counties have
Lyme disease

tick-borne diseases
reported in PA

Lyme disease prevention

PA Lyme Resource Network is a Prevention Partner with the University of Rhode Island’s TickEncounter Resource Center (TERC). This partnership links you to the most up to date tick prevention information on the TERC site. You will find helpful information on self-protection, yard and pet protection, as well as their TickSpotters Program, which engages you to help them identify and keep track of tick activity across North America.

Wear light-colored clothing to guard against ticks

SELF-PROTECTION

Wear light-colored clothing, slacks tucked into socks, and use repellents (Ultrathon, BioUD , Natrapel, Bug Guard Plus, Cutter Backwoods, and some natural repellents (neem, eucalyptus, lemongrass, camphor, cedar oil) may have benefit. Clothing treated with Permethrin is effective. Spraying your shoes and socks provides high reduction in tick attachments.

CONDUCT TICK CHECKS

CONDUCT TICK CHECKS

Remove clothing in garage or shed and shower when coming indoors. Put clothes in dryer for 1 hour at high heat. Check children, pets and self. Ask vet for repellents to repel/kill ticks on your pet.

Minimize desirable tick habitats

YARD

Minimize desirable tick habitats by raking leaves, removing pools of standing water, cutting grass regularly, trimming edges around fences, buildings, sidewalks, controlling weeds, removing dead plant material, twigs and branches, treating shrubs, flowers and any landscape plantings, using Damminix tick tubes.

TickEncounter Resource Center

Lyme Disease Diagnosis

Lyme Disease Diagnosis

Diagnosis

Lyme disease is widely considered a "clinical" diagnosis, based on symptoms, physical findings and the possibility of exposure to infected ticks. Lyme disease can be a multi-system disease.

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Common Lyme Tests

Common Lyme Tests

Current tests can miss a substantial % of active Lyme disease. The 2-tier serology blood test has been found to miss as much as 75% of confirmed cases of early Lyme disease.

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Lyme Disease Diagnosis Summary

Summary

Lyme disease is a "'clinical" diagnosis determined by your physician/HCP and relying on their experience in diagnosing tick-borne diseases. Testing is an adjunct to their clinical diagnosis.

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Testing Resources

IGeneX Inc - Research Testing for Lyme Disease

Igenex Labs

IGeneX Inc. is a Reference Laboratory specializing in State-of-the-Art Clinical and Research Testing for Lyme Disease and Associated Tick-borne Diseases.

visit website
Advanced Laboratory Services focuses on screening for infectious pathogens

Advanced Laboratory

Advanced Laboratory Services focuses on screening for infectious pathogens, including viral, bacteriological, and parasitic.

visit website
Galaxy provides tests for the confirmation of active Bartonella infection

Galaxy Labs

Galaxy provides tests for the confirmation of active Bartonella infection and other novel PCR tests for zoonotic and vector-borne infections.

visit website

LYME SUPPORT GROUPS

Click on the tabs below to find PA Lyme Resource Network affiliated groups, or Independent Support Groups across the state of Pennsylvania. You can also search support groups by location by clicking on the map.

Healthcare Practitioner Information

If you are looking for a healthcare practitioner who is knowledgeable and experienced in diagnosing and treating Tick-borne diseases, contact PA Lyme Resource Network or any of the organizations below for assistance:

ILADS

ILADS

International Lyme and Associated Diseases Society is the only multi-specialty professional medical society focused exclusively on Lyme and tick-borne diseases. They provide healthcare practitioner referrals. Click on "Go To Referral Form" below to go directly to the referral form. Website: www.ilads.org

PA Lyme Resource Network

PA Lyme

PA Lyme Resource Network maintains a referral list that can be accessed by emailing info@palyme.org. Website: www.palyme.org

LDASEPA

LDASEPA

Lyme Disease Association of Southeast PA can sometimes suggest a Lyme treating doctor depending on where you live. You may either request a doctor by email: Lymepa@lymepa.org or by phone: 610-388-7333. Website: www.lymepa.org

Lyme Disease Association, Inc.

LDA

Lyme Disease Association, Inc. maintains a doctor referral system. Click on "Doctor Referral" tab on their website or click below to be taken directly to their referral system. Website: www.lymediseaseassociation.org

LymeNet

LymeNet

At homepage, click on "Flash Discussion", and then click on "Seeking a Doctor” or click below to be taken directly to this forum. Website: www.lymenet.org

Lyme Disease Books

Compendium of Tick-borne Disease

Compendium of Tick-borne Disease

Dr. Kathy Spreen

This Compendium provides a comprehensive overview of tick-borne diseases including, descriptions, diagnostic approaches, treatment options, and an array of management plans.

Cure Unknown: Inside the Lyme Epidemic

Cure Unknown: Inside the Lyme Epidemic

Pamela Weintraub

A comprehensive book written about the past, present and future of Lyme disease, Cure Unknown exposes the ticking clock of a raging epidemic and the vulnerability we all share.

The Diagnosis and Treatment of Babesia

The Diagnosis and Treatment of Babesia

James Schaller, MD

This book is the most current and comprehensive book on Babesia, offering treatment options from both traditional and alternative medicine.

Gone in a Heartbeat; A Physician’s Search for True Healing

Gone in a Heartbeat; A Physician’s Search

Dr. Neil Spector

Dr. Neil Spector, one of the nation’s top oncologists, was educated at prestigious universities, and trained at top medical centers. It seemed too perfect. A mysterious illness brought him to the brink of death.

The Lyme Diet: Nutritional Strategies for Healing from Lyme Disease

The Lyme Diet: Strategies for Healing

Nicola McFadzean, ND

This ground-breaking publication outlines many practical examples and strategies for implementing nutritional change - an essential tool for Lyme practitioners and patients alike.

The Lyme Disease Solution

The Lyme Disease
Solution

Ken Singleton, MD

The Lyme Disease Solution is a comprehensive guide to the diagnosis and treatment of Lyme disease and other tick borne infections. Dr. Kenneth Singleton, is a board certified specialist in Internal Medicine who himself struggled with Lyme disease for 8 years.

Why Can’t I Get Better? - Diagnosing, treating and healing Lyme

Why Can’t I
Get Better?

Dr. Richard Horowitz

From one of the country's foremost doctors comes a ground-breaking book about diagnosing, treating and healing Lyme, and peeling away the layers that lead to chronic disease.

Tick Testing

Check out the University of Rhode Island’s TickEncounter Resource Center’s and East Stroudsburg University’s tick testing resources. Testing your tick can help you and your doctor make timely treatment decisions.

TickEncounter Resource Center

TickEncounter
Resource Center

The TickEncounter Resource Center partners with UMass Laboratory of Medical Zoology and their TickReport.com to offer reliable, high quality tick testing.

LYME-AID kits

East Stroudsburg University
Tick Aid Kit

LYME-AID kits provide individuals with a way of properly removing ticks and the option to have any ticks they discover tested for the presence of the bacteria that causes Lyme disease.

pa lyme brochures

Download our PA Lyme brochure - an excellent resource for basic Lyme disease & co-infection information for you and your friends & family. Also take a look at our Myths vs Facts brochure; 10 Lyme disease MYTHS and the FACTS that dispel them. Print, copy and share!

keep in touch

If you have any Lyme disease related questions, are interested in volunteering for PA Lyme Resource Network, or would like to be on our email list, please contact us on the below form.

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info@palyme.org

PA Lyme Resource Network
211 South Main Street
North Wales, PA 19454